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ACTU


About the ACTU

Who Are We
  • The AIDS Clinical Trials Unit (ACTU) is part of a network of approximately 30 sites around the country that receive funding from the National Institutes of Health to conduct research studies on HIV-related treatments.
  • The focus of the ACTU is to study medicines which can fight HIV infection and treat, or prevent, opportunistic infections associated with HIV.
  • Our trials are open to participants with various stages of HIV infection, those without symptoms and those with a diagnosis of AIDS.
  • Your involvement is important to HIV research. Information collected on a study becomes part of a database that may eventually be used to approve a drug.
  • We add new studies every few months as ongoing research suggests promising new approaches.

Confidentiality
  • When you first visit the ACTU, you are assigned a patient code. All your lab results and blood specimens reported to the study database is identified by your patient code, not by your name.
  • All identifying information is kept in locked files. Only personnel involved in the study have access to this information.
  • No one can access this information without your permission.
  • Your name and the other information will be used to register you at Bellevue Hospital as a clinic patient, in order to process your routine non-HIV labs.

What to expect when you first meet the research staff at NYUMC-Bellevue
  • Your first visit is usually with a screening nurse and lasts about an hour.
  • You share information about your health and learn some key aspects about studies (why some people go on studies, what an "informed" consent is, the importance of maintaining your relationship with your doctor or health care provider).
  • There is plenty of time for questions and it is also possible to return to the clinic while deciding which study is best for you.
  • Childcare arrangements can be made prior to a scheduled appointment by contacting the ACTU staff.

Primary Health Care
  • Your participation in the ACTU is not a replacement for your regular medical care.
  • Clients enrolled in studies are required to have a primary care provider and to see him/her for all issues not related to the study drug.
  • The clinician at the ACTU works with your health care provider. We encourage you to discuss your intentions with your regular provider, and to decide whether the risks of taking new drug(s) are in your best interest.
  • Some issues to consider are: the frequency of visits, length of the study, and the number of medications required and how participation will impact your lifestyle.
  • With your permission, study specific lab results are regularly forwarded to your provider to prevent duplication of tests as well as to keep him/her informed.
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